My dad was diagnosed with ALS in 2010. I remember him calling me on my birthday to tell me. We weren't super close but finding out your parent is terminally ill still crushes you. The average lifespan after diagnosis is about 14 months. We went on a 2 month long camping trip, we wanted his time left to be worth while. Fast forward 5 years and my dad was STILL fighting the good fight. He moved across the country with my mom and a year later my husband, myself and out 10month old packed up and moved across the country to live with them and help care for my dad. He progressed slowly. We had another 3 years before the disease took him from us. It was at that moment I got to choose. Become an advocate or turn my back on everything ALS because it hurt to much to face. Now here I stand almost one year after my daddy died, raising money, awareness and even becoming. Member of the ALS Associations Walk to Defeat ALS committee. This last year has been so hard and the grief knocks me to my feet at times. I am doing everything I can to stay strong and move forward but sometimes I just cant even breathe!
We encourage you to contribute to – or even start – a conversation with others; to share your story here in an effort to help others feel related to, and, conversely, to gain the support you may be longing for. If even just one person could be reminded that they are not alone in this world, we’d consider this a success.
We understand that telling your story may be hard, especially in a public forum. If you’re someone who would like to share your story, but remain private, please email us at email@example.com. We will post your story through our ‘For The Hayters’ profile, so that you may share with full anonymity. You know your story matters; We know so, too.