We encourage you to contribute to – or even start – a conversation with others; to share your story here in an effort to help others feel related to, and, conversely, to gain the support you may be longing for. If even just one person could be reminded that they are not alone in this world, we’d consider this a success.

We understand that telling your story may be hard, especially in a public forum. If you’re someone who would like to share your story, but remain private, please email us at We will post your story through our ‘For The Hayters’ profile, so that you may share with full anonymity. You know your story matters; We know so, too.

May 1

22Q Syndrome is a rare disability I have it effects my heart and learning . And I am trying to raise an awareness about it on my social media because I think everyone gets to have a voice/story to sha
Apr 5

Honestly, if I let myself get offended by every inconsiderate remark or uncomfortable stare, the past twenty seven years would have been miserable. Most days, I concentrate on what really matters, my
Mar 4

Yesterday I went to my sons MRI results appointment..and for the 10th time that I been there since we found out he has cerebral palsy I left without any answer again!. This damn doctor laughs when sh
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