Yesterday I went to my sons MRI results appointment..and for the 10th time that I been there since we found out he has cerebral palsy I left without any answer again!. This damn doctor laughs when she is explaining to me things..all 4 nuerologist that have seen my son's MRI say there is an injury to the right side of my son's brain but 1 says there is an abnormality on the left side..so that to me makes more sense because he has broblem with the right side of his body. that also means that he got a stroke in my womb..so he needs to get blood work done to thicken his blood to avoid any other stroke. All this is all overwhelming and I just want to get out that little room we get put in and scream and cry because I hate having to see my children in pain...if I could ask for one super power it would be to live for ever to protect them and never make them feel pain..it's an everyday struggle being a mother. And on top of it all this he was diagnosed with autism a day after we found out he had cerebral palsy but I found out a week ago the doctor that did the testing was not eligible to do testing and is having his license suspended...so they want me to get him tested again...we been living for an year thinking he is autistic but to me it seems it could be something else...as his getting older his behaviors are getting worse...I got bitten by him two days ago because I try to hug him when his screaming or kicking when he doesn't want to go out the house and that has never happened before. I want to make life more easier for my son but I feel like I don't mainly because he has speech delays so it's hard to understand his needs..I am hurt with all this because I couldn't never imagine this could be happening to me or my children....I am Hispanic/Latina and all our families ever talk about is being "crazy" but nothing further than that. We know nothing else of any mental health problems... I have many stories to tell and I hope with time I can post them.
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momofboys
Feb 14, 2019
If I had one wish
If I had one wish
0
I am so sorry you're met with such difficulty in trying to find answers for your children. No mother should have to go through this. No mother should feel helpless in her search for solutions. But I do hope, in time, you ARE able and willing and wanting to share your stories with us. I am so sure you're not alone in this, and you never know who you'll be helping, simply by speaking up.
Let me tell you. I have been literally through this. And autism diagnosis Gives them a reason not to push through the issues. My son will be 9 in a few weeks. He had the delays, sensory issues, physical issues. Today he would be diagnosed autistic too. Message me please. He’s AMAZING. It’s not about prayer... or faith... or anything. It’s about a parents perseverance and letting them know they have to learn to deal with their environment Bc I can’t always be there to (a) fix it and (b) save you.