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YOUR STORIES
May 1

My rare disability 22Q Syndrome !! Hello everyone my name is Justin G from Boston Massachusetts and I battle with a rare disability

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22Q Syndrome is a rare disability I have it effects my heart and learning . And I am trying to raise an awareness about it on my social media because I think everyone gets to have a voice/story to share and I am not scared to share about my rare disability my goal is to spread more of an awareness!    hopefully If I get featured here it will help grow my following on Twitter and awareness! I also made a video a few weeks ago about my disability it got 174k Views and over 1k Retweets !  You all can follow me on Twitter here @syndrome22q. Due to my disability I have had many life threatening open heart surgeries at Boston’s Children’s Hospital I’ve been through some rough stuff in the hospital.  I hope one day I can be a big celebrity on social media and hope one day my  syndrome will be well known:-) I also wrote a song about how having a disability Is okay and I inspired tons of people that video went viral as well. It got featured on my local news stations and I got to perform my song  at a school in front of students  which I thought was so cool! Please help spread my Awareness !  Thanks -Justin

 

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