THE CONNECTION

We encourage you to contribute to – or even start – a conversation with others; to share your story here in an effort to help others feel related to, and, conversely, to gain the support you may be longing for. If even just one person could be reminded that they are not alone in this world, we’d consider this a success.

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We understand that telling your story may be hard, especially in a public forum. If you’re someone who would like to share your story, but remain private, please email us at forthehayters@gmail.com. We will post your story through our ‘For The Hayters’ profile, so that you may share with full anonymity. You know your story matters; We know so, too.

YOUR STORIES
22Q syndrome Awareness
May 1, 2019

My rare disability 22Q Syndrome !! Hello everyone my name is Justin G from Boston Massachusetts and I battle with a rare disability


22Q Syndrome is a rare disability I have it effects my heart and learning . And I am trying to raise an awareness about it on my social media because I think everyone gets to have a voice/story to share and I am not scared to share about my rare disability my goal is to spread more of an awareness!    hopefully If I get featured here it will help grow my following on Twitter and awareness! I also made a video a few weeks ago about my disability it got 174k Views and over 1k Retweets !  You all can follow me on Twitter here @syndrome22q. Due to my disability I have had many life threatening open heart surgeries at Boston’s Children’s Hospital I’ve been through some rough stuff in the hospital.  I hope one day I can be a big celebrity on social media and hope one day my  syndrome will be well known:-) I also wrote a song about how having a disability Is okay and I inspired tons of people that video went viral as well. It got featured on my local news stations and I got to perform my song  at a school in front of students  which I thought was so cool! Please help spread my Awareness !  Thanks -Justin

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